Dr. Lavoie is a nurse, associate professor and Dean for graduate studies and research at the Laval University School of Nursing. She is also a researcher at the Centre de recherche du CHU de Québec–Axe oncologie, more specifically within the Réseau Québécois de recherche en Soins PALliatifs et de fin de vie (RQSPAL) and the Équipe de Recherche Michel-Sarrazin en Oncologie psychosociale et Soins palliatifs (ERMOS).
Graduated in nursing sciences (B.Sc., M.Sc.), she obtained a doctorate degree in philosophy (Ph.D.) regarding palliative care. Moreover, she completed a postdoctoral internship at the Institute of Human Becoming (Pittsburgh) in order to study the practical implications of the caring approach “Human becoming” (Parse, 1998, 2003, 2007) in the context of end-of-life. Her research program focuses on the experience of relational autonomy and the implementation of caring practices in palliative care which promotes the respect of patients’ autonomy by taking into account their capabilities and limitations. It is composed of three axes: (1) to deepen the experience of autonomy of end-of-life patients; (2) to contribute to the development of a caring practice which can facilitate the expression and the respect of the autonomy of end-of-life patients; (3) to study the limits of certain practices surrounding the respect of autonomy during end-of-life.
Palliative care; Experience and respect of autonomy; Death and dying; Existential-humanist philosophy; Philosophy and theory of nursing sciences; Ethics
To deepen the experience of autonomy during end-of-life
The first focus explores the experience of autonomy in a palliative care setting from the perspective of patients suffering from incurable diseases. An initial project with SSHRC funding allowed for the definition and exploration of six essential aspects of these patients’ experience: affirmation of identity as a human being, ability to act by oneself, generation of positive impacts on well-being, experience of difficult and sometimes painful feelings, altered relationships, and adoption of different attitudes with regard to the future. Through this research, it was possible to critically examine the attitudes of healthcare professionals, for example as manifested in their tendency to act for the patient—acts perhaps motivated by a desire to do good, but nevertheless an “affront” to the patients’ expressed autonomy.
To contribute to the development of a caring practice which can facilitate the expression and the respect of the autonomy of end-of-life patients
The second focus concerns the development of caregiving practices that encourage the expression and respect of palliative care patients’ autonomy. A first research project (SSHRC) describes the changes observed in the practices and beliefs of caregivers, in the experience of patients’ loved ones, and in the documentation of the patients’ expressed wishes following the application of Parse’s theory (2003). Once this theory is put into practice, data analysis demonstrates, among other findings, a shift in caregivers’ focus from completing a task to understanding the patient’s perspective; caregivers placing increased emphasis on listening to patients and on respecting the patients’ priorities and choices. While respect for patient autonomy does present new challenges, the research takes into account solutions and techniques used by caregivers to provide even greater autonomy.
To study the limits of certain practices surrounding the respect of autonomy during end-of-life
This third research focus includes an additional project entitled “De la philosophie des soins palliatifs aux pratiques cliniques actuelles” (associate researcher, SSHRC). The project’s aim is to explore and describe current practices in healthcare facilities that appear at odds with the philosophy of palliative care (e.g., by failing to respect patient autonomy) and that are unconducive to the proper provision of palliative care.
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La théorie de l'humaindevenant : de la théorie vers la pratiqueBook Chapter
V, Chagnon; C, Dallaire; C, Espinasse; E, Heurgon (Ed.): Sous la direction de : Véronique Chagnon, Clémence Dallaire Catégorie: Sciences infirmières Publié en: Mars 2013 434 pages, pp. 291-302, Québec, QC, Les Presses de l'Université Laval, 2013, ISBN: 9782763797526.
L'autonomie des personnes malades et en fin de vieBook Chapter
D, Blondeau (Ed.): Éthique et soins infirmiers, pp. 175-196, Montréal, QC, Les Presses de l'Université de Montréal, 2013, ISBN: 9782760631809.
L'expérience de l'espoir vécue par des enfants atteints d'un cancerJournal Article
Cahiers francophones de soins palliatifs, 13 (1), 2013.
The integration of a person-centered approach in palliative care.Journal Article
Palliat Support Care, 11 (6), 2013.
[Nursing in prison: inmates as patients].Journal Article
Rech Soins Infirm, (113), 2013.
Intervenir auprès des familles : en harmonie avec soi et les autres (Chapitre 6)Book Chapter
de F, Montigny; A, Devault; C, Gervais (Ed.): La naissance de la famille. Accompagner les parents et les enfants en période périnatale, pp. 96-110, Montréal, QC, Éditions de la Chenelière, 2012, ISBN: 9782765034780.
Implantation d’une approche collaborative centrée sur la personne : Perspectives cliniquesJournal Article
Cahiers francophones de soins palliatifs, 12 (2), 2012.
Developing Palliative Care Competencies for the Education of Entry Level Baccalaureate Prepared Canadian NursesJournal Article
Int J Nurs Educ Scholarsh, 8 (1), 2011.
Principes et pratiques des soins infirmiers palliatifs et compétences en soins palliatifs à l'intention du personnel infirmier au CanadaBook
Canadian Association of Schools of Nursing / Association canadienne des écoles de sciences infirmières, Ottawa, ON, 2011.
Soins infirmiers et spiritualité: d'une démarche systématique à l'accueil d'une expérienceJournal Article
Rev int soins palliatifs, 26 (4), 2011.
Recently finished projects
- Réseau de recherche en interventions en sciences infirmières du Québec (RRISIQ), from 2012-04-13 to 2021-04-30